I forgot to mention in the last post that we were notified that Thomas qualifies for the Family Support program this year. I'm relieved we won't have to battle that one again...for now.
We'll be meeting with the social worker next week to come up with our "plan." We're going to put some respite in the plan this year, but not much. We now know someone who is willing to take Thomas occasionally, particularly in the summer months for an overnight or long day.
Husband says we should put seamless socks in there too, since they cost so much and we never know if he'll change his mind. We're going to see what conferences might be available for us to attend, as that can be covered up to a certain amount. We're particularly interested in learning more about autism, now that he has that dx.
We need to look closely at any equipment that might be helpful for him to see if we want to go that route.
This is when the OT's report really helps because she gave specific recommendations. It won't be just us saying it would be beneficial, even if we happen to know a few things along that line.
Saturday, January 8, 2011
Sunday, January 2, 2011
Catching up...again
If you haven't figured it out yet, I'm terrible at blogging regularly. I'm pretty good at reading other blogs, and it seems my thoughts are already out there, written by someone else.
Some of the things going on:
Thomas is no pretty much sleeping in HIS room. YAY!
We did have a significant problem with him getting to sleep, though he'd sleep great once asleep. He had a med check, and it was decided to combine his 2 doses of welbutrin to one. It's helps a lot.
We were able to take him to church two weeks in a row. One of his Christmas presents has helped there. Although I'd rather it be a different toy, he's quiet and not too fidgety during the service.
We took Thomas to a family resturant that doesn't give toys with the meals. We played it smart and went on a Wednesday mid-afternoon. We were the only ones there. He did fantastic. He had two small toys with him to keep him occupied.
The school Christmas concert went as expected. He didn't participate, but he came and sat with us. Or should I say, stayed under my chair. We left with him after his class performed. My hope was that he'd at least go up with his classmates, even if he didn't sing. When I saw a kindergartener with sensory issues do that, I changed my hope immediately. That kindergartener went up and as soon as the music started, pulled his shirt over his head and just stood there. I heard some comments, saw some staring. That convinced me I would not put Thomas through that, no matter how much I might have wanted him to do something "normal." It can't be about what I want. It has to be about what Thomas needs. Next year, we'll probably just keep him home from school that day.
A few "Thomasisms:"
"Grandpa will have popsicle legs." That was said as Dan was leaving the house in shorts, to start the car, with temps in the teens.
"Does Santa like Oreos?"
***
"Why do they call it a penis?" (Not sure why they picked that name. Wonder if Grandpa knows )
"How come girls don't stick out down there?" (Because they don't have a penis)
"How do girls get the pee out?" (Girls sit on the toilet so it can come out)
***
"How does a cat's tail stay up like that?"
"I think Niijii (or dog) still misses us from when we went to the Wisconsin Dells, Madison, and the Lake Superior Hotel.?" (that’s what he calls the Edgewater in Duluth)
***
When I asked T to help me with Dan's birthday cake: "My hands are tired."
When the cake was finished: "When can we eat the cake?"
When he SAW the cake had sprinkles on it: "It even has my favorite color, orange."
I think it's time to read The Little Red Hen.
***
"What will happen to me if you and Grandpa die today? Will I be a black widow?"
***
"Christmas was the day after yesterday." That one gets me every time. He sees time 'backwards." Every time.
Some of the things going on:
Thomas is no pretty much sleeping in HIS room. YAY!
We did have a significant problem with him getting to sleep, though he'd sleep great once asleep. He had a med check, and it was decided to combine his 2 doses of welbutrin to one. It's helps a lot.
We were able to take him to church two weeks in a row. One of his Christmas presents has helped there. Although I'd rather it be a different toy, he's quiet and not too fidgety during the service.
We took Thomas to a family resturant that doesn't give toys with the meals. We played it smart and went on a Wednesday mid-afternoon. We were the only ones there. He did fantastic. He had two small toys with him to keep him occupied.
The school Christmas concert went as expected. He didn't participate, but he came and sat with us. Or should I say, stayed under my chair. We left with him after his class performed. My hope was that he'd at least go up with his classmates, even if he didn't sing. When I saw a kindergartener with sensory issues do that, I changed my hope immediately. That kindergartener went up and as soon as the music started, pulled his shirt over his head and just stood there. I heard some comments, saw some staring. That convinced me I would not put Thomas through that, no matter how much I might have wanted him to do something "normal." It can't be about what I want. It has to be about what Thomas needs. Next year, we'll probably just keep him home from school that day.
A few "Thomasisms:"
"Grandpa will have popsicle legs." That was said as Dan was leaving the house in shorts, to start the car, with temps in the teens.
"Does Santa like Oreos?"
***
"Why do they call it a penis?" (Not sure why they picked that name. Wonder if Grandpa knows )
"How come girls don't stick out down there?" (Because they don't have a penis)
"How do girls get the pee out?" (Girls sit on the toilet so it can come out)
***
"How does a cat's tail stay up like that?"
"I think Niijii (or dog) still misses us from when we went to the Wisconsin Dells, Madison, and the Lake Superior Hotel.?" (that’s what he calls the Edgewater in Duluth)
***
When I asked T to help me with Dan's birthday cake: "My hands are tired."
When the cake was finished: "When can we eat the cake?"
When he SAW the cake had sprinkles on it: "It even has my favorite color, orange."
I think it's time to read The Little Red Hen.
***
"What will happen to me if you and Grandpa die today? Will I be a black widow?"
***
"Christmas was the day after yesterday." That one gets me every time. He sees time 'backwards." Every time.
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